The Residential Information Systems Project (RISP) is a longitudinal study of long-term supports and services (LTSS) that people with intellectual and developmental disabilities (IDD) receive. An annual survey of state IDD agencies is used to gather information about the settings in which LTSS recipients live, federal and state funding mechanisms used, residential setting type and size, age of recipients, and expenditures. A technical report is published annually describing the data from the most recent state fiscal year.  The RISP report includes data from the Families Information Systems Project starting from the fiscal year FY 2015 report. The current report is for FY 2018.

On July 12, 2021, three Administration for Community Living grantees – The Residential Information Systems Project (RISP), StateData.info, and The State of the States in Intellectual and Developmental Disabilities – released 30 Years of Community Living for Individuals with Intellectual and/or Developmental Disabilities . Featuring infographics, photos, and accessible language, as well as personal perspectives on community living and inclusion shared by people with intellectual and/or developmental disabilities (ID/DD) who served as advisors to the project, the free digital book explores the evolution of integration and inclusion of people ID/DD in American society PDF . The book was written collaboratively by the directors of three longitudinal studies funded by ACL’s Projects of National Significance program.

Current Report:

The Residential Information Systems Project Annual Report: Status and Trends Through 2018 is the most recent report with data from Fiscal Year 2018 (July 1, 2017 - June 30, 2018). In addition to the technical report, the following other products are available:

  • State Profiles a single page summary of describing status and trends for one state (updated to FY2018)
  • Infographics graphics depicting key findings from the technical report (in the report, FY 2018)
  • Chart Gallery an interactive tool to view detailed data by state, year, and funding authority. Topics include ICF/IID and Medicaid Waiver recipients, expenditures and expenditures per person from 1977 to 2018.
  • Survey instrument and operational definitions for Fiscal Year 2017 are separate from the report, but available online in the publications section.
RISP FY 2018 report

RISP FY 2018 report

FY 2018 Infographics

There were an estimated 7.43 million people with IDD in the United States on June 30, 2018. Of those people an estimated 1.55 million (21%) were known to state IDD systems and 1.31 million (18%) received at least one long-term service or support in addition to case management.

IDD Prevalence. The number of people in the United States compared to people with IDD on State IDD agency caseloads and receiving long-term supports and services through state IDD agencies.

Ingographic showing where people with IDD live when they don't live with their family. 58% lived in setting of 3 or fewer people. 25% lives in settings of 4 to 6 people. 10% lived in setting of 1 to 15 people. and 7% lives in settings of 16 or more people.

Residence Types of People Who Receive LTSS. Living Arrangements of People Served by State IDD Agencies on June 30, 2018.

US map showing how many people with IDD get Medicaid-waiver supports for every 100,000 people in the population.

Waiver Recipients with IDD. Medicaid Waiver Recipients and Expenditures in Fiscal Year 2018

US map showing how many people with IDD get Medicaid ICF/IID supports for every 100,000 people in the population

ICF/IID Residents. Medicaid Intermediate Care Facilities for Individuals with Intellectual and Developmental Disabilities (ICF/IID) in Fiscal Year 2018

Infographic showing how long-term supports for recipients with IDD live has changed over time based on setting size.

LTSS Recipients in Non-Family IDD Settings. Change in the Total Number of People in Non-family IDD Settings and Proportion of Settings of Different Sizes Between 1977 and 2018

State operated infographic

People in State-Operated Facilities. State-Operated Facilities Serving People with Intellectual or Developmental Disabilities, Fiscal Year 2018

Contact Us

For more information about RISP, contact: risp@umn.edu

Please cite all data and information with the website url.  The citation should read "Residential Information Systems Project (2021). [Page Name]. Minneapolis: University of Minnesota, RISP, Research and Training Center on Community Living, Institute on Community Integration. Retrieved from: https://risp.umn.edu." Please contact us if you are not sure how to cite information found on this page. 

This project is funded through a cooperative agreement from the Administration on Community Living, U.S.Department of Health and Human Services Grant #90DNPA0001-01. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not therefore necessarily represent official ACL or NIDRR policy.