The Residential Information Systems Project (RISP) is a longitudinal study of long-term supports and services (LTSS) that people with intellectual and developmental disabilities (IDD) receive. An annual survey of state IDD agencies is used to gather information about the settings in which LTSS recipients live, federal and state funding mechanisms used, residential setting type and size, age of recipients, and expenditures. A technical report is published annually describing the data from the most recent state fiscal year. The RISP report includes data from the Families Information Systems Project starting from the fiscal year FY 2015 report. The current report is for FY 2016.
The Residential Information Systems Project Annual Report: Status and Trends Through 2016 is the most recent report with data from Fiscal Year 2016 (July 1, 2015 - June 30, 2016). In addition to the technical report, the following other products are available:
- State Profiles (PDF) a single page summary of describing status and trends for one state (updated to FY2016)
- Infographics graphics depicting key findings from the technical report (in the report and separately above, FY 2016)
- Chart Gallery an interactive tool to view detailed data by state, year, and funding authority. Topics include ICF/IID and Medicaid Waiver recipients, expenditures and expenditures per person from 1977 to 2015.
- Survey instruments and operational definitions for Fiscal Year 2016 are separate from the report, but available online in the publications section.
FY 2016 Infographics
IDD Prevalence. The number of people in the United States compared to people with IDD on State IDD agency caseloads and receiving long-term supports and services through state IDD agencies (Prevalence PDF 449 KB)
LTSS Recipients in Non-Family IDD Settings. Change in the Total Number of People in Non-family IDD Settings and Proportion of Settings of Different Sizes Between 1977 and 2016 (Non-Family settings PDF 172 KB)