How many people have IDD?
8.56 million people in the United States had an intellectual and/or developmental disability in 2021. Of that:
- 3.69 million children had a developmental delay (but not intellectual disability or ASD autism spectrum disorder)
- 2.62 million children had an intellectual disability or autism spectrum disorder (ASD) or both
- 25% of children were known to state IDD agencies
- 2.25 million adults had an intellectual and/or developmental disability
- 45% of adults were known to state IDD agencies
Details
- Among children birth to 21 years, 662,450 got services through state IDD agencies in 2021. That is 24% of children with ID or autism; 10% including children with ID, ASD or developmental delays.
- Of the 5.6 million children with intellectual disability, autism spectrum disorder or developmental delay who did not receive LTSS through state IDD agencies most got services from schools. Some got services from other state agencies.
- Among adults 22 years or older, 45% (1 million) got services through state IDD agencies in 2021.
- Nearly 1.24 million adults with IDD did not get services through state IDD agencies.
- Most adults with IDD are supported informally by families.
- An unknown number of adults with IDD got government benefits such as supplemental security income, public housing, or food assistance.
- These estimates come from analyses combining data from the 2021 RISP survey, and the National Health Interview Surveys (1995 for adults, 2019-2021 for children).