Announcements
Here you'll find the latest RISP products and announcements.
RISP in the Media
July 16, 2024
RISP Principal Investigator Sherri Larson, Ph.D. was a guest on AUCD's Tuesdays with Liz podcast for their “Research for All” series.
Upcoming Conferences.
July 16, 2024
If you are attending these conferences, please consider stopping by to learn more about our work.
- IASSIDD World Congress (August 5-8, Chicago)
- Poster: "Focus Group Study of Implementation of the US Home and Community Based Services Rule"
- Presentation: "US National Longitudinal Studies on the Impact of the 2014 Medicaid HCBS Rule and COVID"
- HCBS Conference (August 18-22 Baltimore)
- Presentation: "IDD Agency Views on the Implementation of the 2014 HCBS Final Rule"
New Data Byte, "People in Family Homes with Waiver and Non-waiver Services"
July 16, 2024
Most people with intellectual or developmental disabilities (IDD) live with family. Since 1982, services have expanded beyond institutions to group homes and family settings. From 1998 to 2020, those receiving services with family grew from 325,650 to 876,058. State-funded services decreased from 75% in 1998 to 40% in 2020, while Medicaid Waiver-funded services rose from 25% in 1998 to 60% in 2020. Despite more paid supports, many still lack them. States should continue paying family caregivers and use federal Medicaid funds to expand services and reduce waiting lists.
New Data Byte, "Fewer People with IDD Live in ICF/IIDs, But Progress is Not Equal"
July 16, 2024
Medicaid Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IIDs) are institutions where four to 500 people live and get support. Use of these facilities is declining, but progress is not equal across states. Four states have closed all ICF/IIDs, but 10 states still serve more than 30 people per 100,000 of the population in ICF/IIDs.
New Data Byte, "Institutionalized Adults with IDD, 1967 to 2020"
July 16, 2024
In 1967, 29.1% of adults with IDD in the U.S. lived in large state-run institutions, while most others resided with family. By 2020, only 0.7% lived in such facilities, with an additional 1.9% in other large settings. 46% of adults with IDD received services through state IDD agencies, and 5.8% of those receiving services lived in institutions or similar large settings. Research indicates better quality of life in community homes. We have made progress, but more support is needed for transitioning individuals from institutions to community settings, including increased funding and more direct support workers.
RISP in the Media
April 15, 2024
RISP was recently featured in...
An NPR story, "For Patients with disabilities, this doctor prioritized independence - and fun" (podcast and article )
The CBS News short documentary, "No place like home: People with disabilities' fight to stay out of institutions "
New Data Byte, "Caseloads versus People Receiving Services."
April 11, 2024
The number of people known to state IDD agencies and the number receiving services increased 21% from 2013 to 2020. In 2020, 85% of the people known to state IDD agencies got one or more services besides case management. Some people who are known to state IDD agencies and not receiving services may be waiting for services. States should make sure people get the services they need.
2020 State Profiles are Live
April 11, 2024
State profiles are data snapshots summarizing the most recent and historical data in each state. They also feature state notes that describe important information explaining states' data.
New Data Byte, "Changes in Spending for Long-term Services and Supports between 1982 and 2019."
March 7, 2024
Since 1982, the number of individuals with Intellectual and Developmental Disabilities (IDD) receiving services in community settings has surged, while those in Medicaid-funded IDD institutions have been cut in half. Home and Community Based services prove far more cost-effective than institutional care in Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IID). We should continue increasing access to community-based services, enabling transitions for those in ICF/IID who desire it. Addressing the shortage of direct support workers is crucial to fulfilling service commitments for all.