How do the places people live differ by age and by state?

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How do the places people live differ by age?

Bar chart comparing residence type for Medicaid Waiver and ICF/IID recipients who were children or adults. In 2020, 218,286 children 21 years or younger and 320,073 adults 22 years or older received Medicaid Waiver-funded supports while living in the home of a family member. In additional 24,523 children and 391,432 adults get Medicaid Waiver-funded support while living in settings other than the home of a family member. Finally, 4,384 children and 60,518 adults lived in Intermediate Care Facilities for Individuals with Intellectual Disabilities.

Details

Most long-term supports or services (LTSS) for people with IDD are funded either by a Medicaid Home and Community Based (HCBS) Waiver or through Medicaid Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IID). In 2020, an estimated 218,286 children 21 years or younger and 320,071 adults 22 years or older received Medicaid HCBS Waiver-funded services while living with a family member. Another 24,523 children and 391,432 adults received Medicaid HCBS Waiver-funded supports while living in settings other than the home of a family member. Finally, 4,384 children and 60,518 adults lived in an ICF/IID.

In 2020, 88% of children got Medicaid HCBS Waiver-funded supports while living with a family member, 10% got Medicaid HCBS funded supports while living in other settings and 2% lived in an ICF/IID.

In 2020, 41% of adults got Medicaid HCBS Waiver-funded supports while living with a family member, 51% got Medicaid HCBS Waiver-funded supports while living in another type of setting and 8% lived in a Medicaid ICF/IID.

How does the number of people with IDD who live in state-run facilities of 16 or more people differ by state?

Map of the United States showing how many people with intellectual and developmental disabilities in each state lived in state-run facilities of 16 or more people.

The 18 states where no people with IDD lived in large state facilities were Alabama, Alaska, the District of Columbia, Hawaii, Indiana, Kentucky, Maine, Michigan, Minnesota, Montana, New Hampshire, New Mexico, Oklahoma, Oregon, Rhode Island, Tennessee, Vermont, and West Virginia.

The 22 states with fewer than 500 people with IDD in large state facilities were Arizona, California, Colorado, Connecticut, Delaware, Georgia, Iowa, Idaho, Kansas, Louisiana, Massachusetts, Maryland, Missouri, North Dakota, Nebraska, Nevada, New York, South Dakota, Utah, Virginia, Wisconsin, and Wyoming.

The seven states with 500 to 999 people with IDD in large state facilities were Arkansas, Florida, Mississippi, Ohio, Pennsylvania, South Carolina, and Washington.

The four states with 1,000 to 2,841 people with IDD in large state facilities were Illinois, North Carolina, New Jersey, and Texas.

Details

  • By June 2020, 18 states had closed all state-run IDD facilities serving 16 or more people.
  • An estimated 15,322 people lived in 103 facilities in the remaining states.
  • Four states housed more than 1,000 people with IDD in large state-run IDD facilities.
  • Seven states housed between 500 and 999 people in large state run IDD facilities.
  • The remaining states housed fewer than 500 people in those settings.

Full list of Key Questions about Support for People with IDD