How many people with IDD get paid supports in 2021?

Details

Of the estimated 2.6 million children with ID or ASD birth to 21 years, 25% (662,450) were known to state IDD agencies in 2021.
Of the 2.0 million children with ID or ASD not known to state IDD agencies most got services from schools. Some got other government benefits such as Supplemental Security Income (SSI),Medicaid Early and Periodic Screening Diagnosis and Treatment, or Child Welfare Services.
Of the estimated 2.3 million adults with IDD, 48% (1,007,735) were known to state IDD agencies in 2021.
Of the 1.2 million adults with IDD not known to state IDD agencies most lived with a family member. Some got other government benefits such as SSI, public housing, or food assistance.

In 2021, there were 171,137 people living in their own homes or with family members waiting for and not yet receiving Medicaid Home and Community-Based Services (HCBS) Waiver funding.
The number of people waiting for services has been declining since 2018.
Of those waiting, an estimated 36,170 recieved Targeted Case Management services. Others may have been receiving Medicaid State Plan funded services.