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The Residential Information Systems Project (RISP) is a longitudinal study of long-term supports and services (LTSS) for people with intellectual and developmental disabilities (IDD). An annual survey of state IDD agencies is used to gather information about the settings in which LTSS recipients live, federal and state funding sources, residential setting type and size, recipient age and expenditures. A separate annual survey asks state-run IDD facilities serving 16 or more people to describe the people living in those settings. The most recent report, released December 2021, shares data from the FY 2018 surveys.

Current Report

The Residential Information Systems Project Annual Report: Status and Trends Through 2018 published December 2021 describes services as of June 30, 2018. Related products include:

  • State Profiles summarize key findings from the most recent technical report for individual states.
  • Infographics depicting key findings from the technical report and can be downloaded for use as long RISP is clearly cited as the information source.
  • Chart Gallery an interactive tool to customize reports by state, year or funding authority.
RISP FY 2018 report

RISP FY 2018 report

FY 2018 Infographics

There were an estimated 7.43 million people with IDD in the United States on June 30, 2018. Of those people an estimated 1.55 million (21%) were known to state IDD systems and 1.31 million (18%) received at least one long-term service or support in addition to case management.

IDD Prevalence. The number of people in the United States compared to people with IDD on State IDD agency caseloads and receiving long-term supports and services through state IDD agencies.

Of the 1.31 million people with IDD getting supports in addition to case management, 59% lived with a family member, 11% lived in a home of their own, 5% lived with a host or foster family, 16% lived in a group home and 9% lived in an institution.

Residence Types of People Who Receive LTSS. Living Arrangements of People Served by State IDD Agencies on June 30, 2018.

US map showing how many people with IDD get Medicaid-waiver supports for every 100,000 people in the population.

Waiver Recipients with IDD. Medicaid Waiver Recipients and Expenditures in Fiscal Year 2018

In 2018, an average of 21.5 people per 100,000 of the population lived in an ICF/IID. The number per 100,000 ranged from 0 in Arizona, Michigan, and Oregon, to 100 per 100,000 in Louisiana.

ICF/IID Residents. Medicaid Intermediate Care Facilities for Individuals with Intellectual and Developmental Disabilities (ICF/IID) in Fiscal Year 2018

The number of people with IDD getting supports while living somewhere other than with a family member increased from 247,780 in 1977 to 516,629 in 2018. Of the people who did not live with a family member the proportion who shared a home with 6 or fewer service recipients increased from 8% in 1977 to 83% in 2018.

LTSS Recipients in Non-Family IDD Settings. Change in the Total Number of People in Non-family IDD Settings and Proportion of Settings of Different Sizes Between 1977 and 2018

In 2018, an average of 21.5 people per 100,000 of the population lived in an ICF/IID. The number per 100,000 ranged from 0 in Arizona, Michigan, and Oregon, to 100 per 100,000 in Louisiana.

People in State-Operated Facilities. State-Operated Facilities Serving People with Intellectual or Developmental Disabilities, Fiscal Year 2018

Contact Us

Please cite as "Residential Information Systems Project (2022). [Page Name]. Minneapolis: University of Minnesota, RISP, Research and Training Center on Community Living, Institute on Community Integration. Retrieved from: https://risp.umn.edu." Contact us at RISP@umn.edu if you have questions or need additional information.