State IDD Agency Caseload, Long Term Supports and Services (LTSS) Recipients, and Settings

Medicaid Recipients, Expenditures and Average Cost Per Person

How to use these charts:

  1. Select a topic by clicking on the blue bar at the top of each section
    • To scroll through and see available topics, click on the arrows at the end or move the scroll bottom under the boxes.
    • Each topic indicates if data are shown in a bar chart or line graph
  2. Select the state(s), and/or years(s) to view
    • Click on the drop down boxes below the bars to see available options for each chart
    • Click to select one or more options. Bar charts can select one state at a time. Line charts may have the option for one or more states.
    • Some charts include the option to choose more than one year or more than one state for comparison 
    • In graphs or charts with missing data for a year or a state, data are not included in the selection list.
  3. Viewing the data
    • Hover over a line or bar to see details about the data element
    • Change the data using the drop down menus on the upper left corner of each chart
    • Scroll down to the bottom of the page to see definitions, abbreviations, and footnotes. Notes may also be contained on each data element.
    • To further customize the chart or graph, you can click on the category label to either exclude it from the view or only display that value "keep only"
    • A value of zero is used to indicate that a state reported zero. Missing data are indicated by blank spaces with no value labels
  4. Downloading information
    • Click on the download button located in the lower right corner of each chart to view the available options
      • Image: produces a graphic showing the chart (after exporting, one can crop off the menu bars at the top)
      • PDF: produces a document in PDF format

Preparation of this presentation was supported, in part, by a cooperative agreement (90DN0297) from the Administration on Intellectual and Developmental Disabilities, Administration for Children and Families, and a grant (#H133B080005) from the National Institute on Disability and Rehabilitation Research (NIDRR). Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore necessarily represent official AIDD or NIDRR policy.

Larson, S.A., Eschenbacher, H.J., Anderson, L.L., Taylor, B., Pettingell, S., Hewitt, A., Sowers, M., & Bourne, M.L. (2018). In-Home and Residential Long-Term Supports and Services for Persons with Intellectual or Developmental Disabilities: Status and trends through 2016. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.


Medicaid Waiver: Funding authorized in Sections 1115; 1915 (a) (b) (b/c); or 1915 (c) of the Social Security Act. The Medicaid website maintains a detailed list of Medicaid waivers by state

Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IID): Medicaid-funded institutions housing four or more people with IDD in which 24 hour supports and services are provided. The annual cost of ICF/IID settings includes food, shelter and clothing as well as comprehensive and individualized health care, rehabilitation and habilitation services

Abbreviations and notes:

  • *: See State notes in the Appendix of the RISP report
  • b: Nonstate settings reported, but not state settings.
  • c: State settings reported, but not nonstate settings.
  • d: Other date than June 30 of the reporting fiscal year
  • DNF: Did Not Furnish
  • e: Estimate from the state
  • i: Imputed Estimate generated based on provided data
  • PD: Partial Data
  • s: Other Source (see the full report PDF (9.6 MB) for citations and details)